Raising A RareFeb 12, 20203 min readWhy not Autism?!?!?I realize this question may upset some people but that is not our intent. We use this hashtag so people WILL ask us, “Why NOT Autism????”...
Raising A RareFeb 12, 20201 min readLet them have the mac and cheese!Tonight I really beat myself up about not making dinner. I'm tired, stressed, sick, and got some weird news yesterday and I just didn't...
Raising A RareNov 22, 20191 min readWhat is Lamb-Shaffer Syndrome?Lamb-Shaffer Syndrome is a genetic, neuro-developmental condition with symptoms such as severe expressive speech delay, global...
Raising A RareNov 22, 20191 min readGift Card Raffle!!!!Our first fundraiser is underway!!! We have over $1500 in gift cards and other prizes that ONE lucky person will win!! 💵Tickets are: $5...
Raising A RareNov 22, 20191 min readAwareness Challenge! Awareness is incredibly important for Lamb-Shaffer Syndrome. There are currently only 200 people IN THE WORLD with this rare genetic...
Raising A RareNov 22, 20194 min readThe BeginningSung in the words of my late Momma, let’s start at the very beginning, a very good place to start! Isaac was born on July 19th 2012. We...